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(Cкачать работу)once again swallow on his own (Universal). That summer, at the 1987 ALD Family Conference the parents of other children finally began to voice their opinions instead of treating the doctors like gods. They were in an uproar, especially when they found out that even though Lorenzo?s levels were normal a trial wasn?t planned for another year. It is in cases like these that the medical research time frame can be heartless. It is unfortunate that it has to be this way, but it takes people like the Odones to make difference. Presently Lorenzo is communicating by blinking his eyes for no and moving his fingers for yes. He can now turn his head from side to side and he has regained most of his eyesight. He will be seventeen at the end of May and he is still awaiting brain cell transplant surgery(1-800 #). Augusto and Michaela are active in the Myelin Project which is a team of scientists trying to regenerate myelin in human tissue. So far it has been successful only in rats and dogs, but research looks promising (1-800 #). Today hundreds of boys are taking Lorenzo?s Oil and remaining symptom free. This is encouraging and gives hope to many families. ALD boys are now able to grow and develop naturally without having to deal with such a relentless disease. Augusto Odone received an Honorary Medical Degree for his part in the discovery of Lorenzo?s Oil. Very many people are in his debt.
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?All we could do was help him live with dignity.? RN. 1986 Sep. 55-57, 59, 61. Asbury, Arthur K. M.D. Ed. Diseases of th Nervous System Clinical Neurobiology. 2 vols. Philadelphia: Ardmore. 1986. Brett, Edward M. Ed. Paediatric Neurology. ?Adrenal Leucodystrophy.? London: 1983. 154-157. Douglas, Leslie A. RN, MSN. ?Adrenoleukodystrophy: a nursing challenge.? Journal of Pediatric Nursing. 1989 Jun. 206-210. Garg, Bhuwan P. ?Evoked Response Studies in Patients With Adrenoleukodystrophy and Heterozygous Relatives.? Archives of Neurology. Vol. 40 1983 June 356-359. Johnson, William G. ?Adrenoleukodystrophy? Merrit?s textbook of Neurology. Lewis P. Rowland ed. Philadelphia: Lea & Febiger. 1989. 536-538. Lorenzo?s Oil. Videotape Universal Studios, Inc. 1992. 2hrs. 16 min. ?Neurological Progress: Moser et al: Adrenoleukodystrophy.? Annals of Neurology 1984 Dec. 637-638. ?They won?t let their son die.? Newsweek. 1987 Nov. 16. 98-100. 1-800-8myelin. The Myelin Project in Washington D.C.